Traverse are currently conducting an independent evaluation of the Miles Frost Fund’s programme piloting new approaches to enhance cascade genetic testing for Hypertrophic Cardiomyopathy (HCM).
Traverse is currently conducting an independent evaluation of the Miles Frost Fund’s programme piloting new approaches to enhance cascade genetic testing for Hypertrophic Cardiomyopathy (HCM).
The Miles Frost Fund aims to help establish a fully functional, UK-wide cascade testing service for parents, siblings and children who could be at risk of Hypertrophic Cardiomyopathy (HCM). This will ensure that people who may have HCM are identified, tested and, if found to have the gene, monitored and treated in the most timely and efficient manner, with consistent service provision accessible to all who may be affected across the UK.
The Miles Frost Fund service pilots are a positive first step towards improved outcomes for people at risk of HCM.
Our evaluation has been designed to make a strong commissioning case for the roll-out of the service and leverage change through identifying and sharing best practice. We will be gathering data via baseline in-depth interviews with project leads at each pilot site, followed by more wide ranging stakeholder interviews (with commissioners, follow up clinics) and focus groups with service users. Our evaluation also includes an economic assessment
The evaluation will identify the key factors that make up a successful service, as well as the barriers and enablers to implementation. This will be illustrated through service-level case studies that show how different aspects of the health service are working together effectively in a pilot site and demonstrate the impact of this on patients and the NHS.
We will also help to share best practice and learning points amongst pilot sites to enable maximum impact from this phase of UK service development. We will be sharing what we are finding, whether positive or challenging, as we go along via workshops. This will ensure the people implementing the programme have the best possible chance of success, rather than receiving an evaluation at the end which identifies a range of things that could have been put right sooner.
An interim report will be produced in August 2018